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5 yr old starting remicade


Fri, July 23, 2010 11:13 AM

My son has had UC now for 2 years and been on 6mp, Pentasa, Endocort, and Prednisone for flare-ups during that time. This past flare up has not been helped by steriods and we made the decision to begin Remicade. Anyone that has/is on Remicade -I'd appreicate hearing your experiences.  Thanks. My email is mylittleguyuc@ymail.com    Thanks!

FPO mylittleguy
Joined Feb 7, 2009

Mon, August 09, 2010 9:58 PM

 Reply posted for mylittleguy.

How are things going?  Thinking of you all....


Claire's Mom

FPO azmom
Joined Jul 20, 2009

Fri, August 06, 2010 10:13 AM

 Reply posted for mylittleguy.

Hello,
I know it has been awhile since you posted this question, but figured better late than never. My daughter, who is now 20 yrs old, has been on Remicade for 2 yrs. I too was very afraid of this treatment, but it really was the best thing for her. I really hope this treatment works as well for son and it did for my daughter. I too have Crohn's and was diagnosed at the age of 19. Believe me when I tell you that when the pain is really bad you dont care what they have to do to take the pain away. Honestly, I would rather be in Labor then have the Crohns or Colitis pain. I truly understand your concerns, but when we were at a Crohns Convention we were told that only 13 people have a serious reaction to Remicade out of all of the people that are using it for Crohns of Colitis.  I wish you and your family the best of luck. I know my daughter and I were much older when diagnosed, but your son will be fine once they find the right treatment for him.  I am still on oral medicaions, but those did not work for my daughter. I hope this helps ever it t is just a little piece of mind.

Soccermom

FPO soccermom2
Joined Aug 6, 2010

Fri, July 23, 2010 12:59 PM

 Reply posted for mylittleguy.

We'll be thinking of you!!!  I wish I had a Remicade experience to share but don't.  I know lots of people have done really well and hope it works that well for your son!


Prayers,

Claire's Mom

FPO azmom
Joined Jul 20, 2009