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10 yr old son with Crohn's - interested in LDN


Tue, October 05, 2010 8:51 PM

My 10 yr old son was diagnosed last year with Crohn's disease.  At the time it was confined to the large intestine, and he was given prednisone and Asacol.  Earlier this year, he developed perianal fistulas, and his GI has tried Flagyl, Cipro and Protopic ointment.  None of the treatments appear to be helping the fistulas.  Other than the drainage, the fistulas do not really seem to bother my son.  The GI wants to try Remicade to heal the fistulas, but we are really reluctant to try this because of the possible scary side effects.  We are told that the risk is low, but still the risk of lymphoma given his age is a very difficult thing to risk.  His GI is willing to try LDN despite not ever having used it before.  We are trying to find as much information as possible to make the best decisions that we can for our son and appreciate any information that anyone could provide.  We appreciate the many wonderful people on this forum who have already shared so much good information.

FPO jlbtjb
Joined Oct 5, 2010

Thu, October 07, 2010 6:47 PM

 Reply posted for jlbtjb.

Hi, I am Marcella Victor's mom. He was diagnosed w/Colitis last Jan. I am not sure wht LDN is...

FPO victorsmom
Joined Feb 17, 2010

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