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my mom has been diognosed with chrones since 2005. she has to take so many pills and she has been to the ER over 5 times in the matter of 3 months. she has back and abdominal pain every day. she is recently having a really big flair that is making her produce biole that she has no warning about. it makes me really sad because she says that the side-affects of chrones can kill her. when we talk about it and she says i hope you dont inharet this gene. i say that if i dont i will feel bad because she has to go thru all this pain and i have to grow up watching her be in all this pain. nobody in her family has had this disease. i have no idea of how i could comfert her or tell her what she could do. i have tryed to say go on a diet or something but she said that nothing has really helped besides medications. i wish i new what to do to help her. please post comments of what helped you to see if they could help her. i would really appreceate it

                              pink ribbon

 Reply posted for pink ribbon.

Your mom's flair up may have been brought on by her recent surgery.  The stress it puts on your body (and mind) may have something to do with it.  I would suggest that she keep her GI doc posted on her condition/symptoms after surgery.  Many times different doctors seem to forget to communicate with other specialists/docs that the patient is involved with.  A call to her GI may aleve some of this.  Perhaps her meds need adjusting??   I hope she finds some relief soon.  

As for me, I had become very sick in Nov. 2009 and was confirmed CD in Jan. 2010 (it will be a year next week).   I consider myself fortunate because I was a grown adult when the full-fledged flair sent me to the hospital and that I have been coping for many, many years.  

Keep being the caring person that you are and don't forget to take care of yourself doing things kids do....have some fun!  

All my best.

Lizzies Mom 

 Reply posted for Lizzies Mom.

wow i just read your post  about lizzie being digonsed and you yourself have it. im really sorry it must be hard. what year were you digonsed??????

 Reply posted for Lizzies Mom.

That must have been tough having to deal with that when she was four. I have some neighbors that are around that age and they are really pickie about their veggies and other foods. When i was four i know for sure that i was pickie. (i still am a little haha) anyways my mom has been eating great and she has been told by the docters"have a healthy diet"......nothing happened because she already had a really healthy diet. So recently she has her gull blatter removed im not sure why but she has had a flair that is really bad.

THANKS,    pink ribbon.

 Reply posted for pink ribbon.

Pink Ribbon,

Your post truly touched me.  Your Mom is soooo  lucky to have a child as yourself.  You are a blessing!   

I understand how difficult it is to see someone you love with all your heart live with this disease.  (My daughter was only 4 when she was diagnosed).   There are a few things you can do that may help.   First and foremost, tell her how much you love her and how much you care.   You might want to suggest she check out this site too.   She may benefit from reading some of the stories, recommendations, etc.  Try switching up her diet.  I know SCD isn't for everyone, but perhaps read up on it and give it a try.  If your mom doesn't feel up to it, then perhaps incorporate some of the key components or doing low fiber, low residue.  It is hard for me to comment on her diet, not knowing it, but a few changes may make a difference.  For my daughter, one of her fav's was salad...raw veggies.....we had to give them up, as well as whole grain everything.  Being we were consuming lots on a daily basis, we saw an improvement with her symptoms.

There may be a support group in your area.  We used to go to one a month and would usually make it a night out w/dessert on the way home or dinner on the way (if we had the time).   It was useful to both Lizzie and myself.  It gave her time w/other children who had "special bellies" and offered me an opportunity to visit with other parents. 

One thing I want you to remember is as a child you can only do so much...you can offer the help, but you can't do it for her.  Try not to take the burden upon yourself (though your intention is good).

Lizzies Mom