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Hi

Thu, February 10, 2011 5:41 PM

My 11 daughter was diagnosed with UC this past November. It has been a rocky road , as you all know but she is starting to feel better. She will be off the steroids this weekend so we are keeping our fingers crossed that she doesn't have another flare up. One thing that has gotten her down in the dumps is the joint pain. I give her tyneol but it doesn't seem to work. Any suggestions? Also she is desperate to talk with someone else going through this. If there is anyone willing to chat with her I would be grateful.

anne227
Joined Feb 3, 2011

Sat, February 19, 2011 8:58 PM

Reply posted for anne227.

Hi there, my 11 yo daughter was diagnosed with Crohn's almost 4 years ago. 2 years before that she was suffering from really bad joint pain (which eventually paired with the flare led me to a gi specialist - that was the first sign she had Crohn's was the joint pain). She still gets crippling joint pain in her ankles, knees and hips (sometimes a finger or 2). The only thing she takes is Tylenol but what does help her is a heating pad and rest. I won't risk giving her NSAIDS as we all know that's not a good idea with IBD. Try the heating pad combined with the Tylenol, I hope it works for her. My daughter would love to chat with yours via email! I have been looking over the last couple of years to connect her with another girl her age, sounds great!! Our email is dajeetee@yahoo.com if you would like to connect. I always like to connect with another mom too! We all could use as much support as we can get, right!? Thanks!

sraymom
Joined Jun 28, 2010

Fri, February 18, 2011 5:10 PM

Reply posted for anne227.

My daughter, 14, was diagnosed with UC in January 2008. I am sure she would be happy to chat with your daughter. Also, I would be happy to chat with you as well - parents need the support just as much as our kiddos.

onedreamer@juno.com

momofmouse
Joined Jul 2, 2009

Tue, February 15, 2011 5:03 PM

Reply posted for anne227.

He sent her an email, hope all is well and he can help her out. He has made several friends through Camp Oasis and I know they all help each other out and just to vent about it.

Take Care

Jack's Mom

jmrogers4
Joined Nov 12, 2010

Tue, February 15, 2011 1:41 PM

Reply posted for jmrogers4.

Thank you for your response. My daughter would be happy to be able to ask your son some questions. I sent you an email with the information. Thanks again...

anne227
Joined Feb 3, 2011

Fri, February 11, 2011 11:21 AM

Reply posted for anne227.

My 11 year old son has crohn's but would be happy to chat with her. He chats with some other UC/Crohn's kids that he has met at camp or through this site. You can email me at jmrogers4 @gmail.com and I can pass along his info.

jmrogers4
Joined Nov 12, 2010

Fri, February 11, 2011 11:19 AM

jmrogers4
Joined Nov 12, 2010

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