Well Mitchell is back in the hospital. We have done all of the meds and started Remicade in October. It is not working. He was put back on Prednisone last week which hasn't helped so we are trying IV fluids and IV Steroids. Doctor has been mentioning surgery for awhile now. I asked about probiotics, SCD Diet, LDN and such. He said they are wonderful when you can be in remission the problem is we can't seem to get there. He said Mitchell needs something more of a 'rescue' since we can't get this under control. This is so hard. He is underweight, not growing, has bone loss and should be hitting puberty but isn't. I don't want to let them take his colon but I don't want to keep trying pumping him full of medications that don't seem to help. He is currently on Pentasta, Remicade, steroids, prilosec, vitamin d, calcuim. Now I sit hour after hour researching and waiting for doctors to come in.
Reply posted for SherwoodMaZ.
I hope the PICC line and the rest do the trick. Thinking of you.....
Claire's Mom
Reply posted for SherwoodMaZ.
I know how hard it is being in the hospital.....ugggh, it never gets easier (soo stressful). I will be praying for Mitchell's recovery. Hopefully giving his system a rest will get him back on track.
Keep us posted.
Lizzies Mom
Reply posted for SherwoodMaZ.
We are still in the hospital. Nothing is working. Mitchell will be getting a Picc line in the morning to give his bowels a rest. Too much weight loss; he needs nutrition. Thank you for all of the thoughts and prayers.
Reply posted for SherwoodMaZ.
I'm praying that Mitchell gets into remission. Hang in there, mom..
Reply posted for SherwoodMaZ.
I'm so sorry.......we'll be thinking of you guys. Keep us posted on what is happening. I know you just want the best for your son.
Hugs,
Claire's Mom
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