My daughter has tried the SCD Diet, and every oral medication you can think of, she has suffered Kidney Stones and C-Difficile and has had a very tough year. She became very sick again in February so we decided to start Remicade, she has had her 3rd treatment about a month ago and then was taken off all of her other oral medication (Prednisone, Colazol)
She had been loosing her hair before she actually started Remicade but the last week a few other things have happened.....orange stools....pain and sick feeling is back, she is so tired all the time and her eyes have been bothering her and I noticed that the top lashes on one eye are all gone...what is happening??
Anyone who has had anything simular I would really like to hear from you.
Reply posted for Momcat.
yikes...I am sorry to hear all you have been dealing with! How scary!
Has she had any recent blood work? Definately get in to see her Dr. Hang in there....I know it's hard (I have a 12 yr old with UC)
Reply posted for Momcat.
Agreed. This warrants a visit to the MD. I know she's probably sick of that but you want to be ahead of the situation instead of chasing it.....
Reply posted for Momcat.
Momcat- No experience with Remi. Malnutrition might be the culprit for hair loss. Ask to have her levels checked. Never hurts to cover all possibilities.
Wendy
My son has Crohn's and is currently in jail. T....
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