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Remicade-son is germ magnet


Mon, November 07, 2011 7:28 AM

My 6 year old son (Jack) has been on Remicade for 14 months.  Although he hasn't had any serious side effects, he has had 8 relapse cdiff infections, 2 strep throat infections, and now might have pneumonia.  His immune system is obviously compromised.   

Any advice?

FPO trojen
Joined Oct 16, 2011

Tue, April 24, 2012 10:02 PM

 Reply posted for DawnXoxo.

They are suggesting Remicade for my 9 year old who was diagnosed in Feb due to lack of effectiveness of Pentasa. what side effects made her end up in the hospital.

FPO crohnsattack
Joined Apr 24, 2012

Wed, April 11, 2012 10:55 AM

 Reply posted for nancy789.

Do any of your kids have an immune deficiency? My son has Common Variable Immune deficiency and has just been diagnosed with Chron's.  The challenge is how to treat him with an immune system that is already weak? Were your kids getting lots of infection prior to taking Remicade or was it a side effect of the medication? 

FPO taw1492
Joined Apr 10, 2012

Sat, November 12, 2011 10:20 PM

 Reply posted for trojen.

Hello,

 

I'm so sorry, I hope Jack recivers soon. My daughter (17) had to be taken off Remicade after the 2nd dose, sever side effects ended up in ICU then UCLA (now just taken off 6mp due to sever side effects as well). She too caught c-diff, my thoughts and heartfelt support to you, Jack and your family.

FPO dawnxoxo
Joined Nov 12, 2011

Wed, November 09, 2011 6:35 PM

 Reply posted for trojen.

ugh, sorry to hear it.   my 14 yr old daughter was diagnosed over the summer, and she's been hanging on to an upper resp. infection for quite some time.   might be useful to check w/your GI doc. about any add'l vitamins or supplements, and a flu shot, if you haven't done that yet.  hope everyone is feeling better soon!

FPO nancy789
Joined Jul 23, 2011

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