My son was about to have a flare after the holidays, but we were able to avoid it by immediately going back to SCD along with cocunut oil and VSL. ( he still takes daily 50mg 6MP ) and sometimes I think that he may be able to go without the meds, but I am so afraid he may end up with a flare.
I stopped the medicine last July and unfortunately he had the flare, however, we were not fully knowledgeable with SCD and he was drinking lots of orange juice which I think it what caused his last flare.
We are now juicing at home mostly "green organic Juices" and he seems to be doing really well with this... It is a lot of work, but definetely worth it.....
I am glad that I was able to stop the use of REMICADE and CIMCIA as suggested by his Dr. I do not know if 6MP is just as bad, but REMICADE really scared me.
Thanks to everyone who posts excellent information in this website.
Matthew's mom
Reply posted for alanschachter.
What do you think about imuran? my daughter who's 8 now was put on it about 2 years ago and it worked very well till she started to flare up in dec. now she is on prednisone too. is LDN something i should think about at this time? it wasnt mentioned at all from her DOC. thank you.
Reply posted for Lissette1515.
could you please explain more about what and how you started to use SCD, VSL, cocount oil ? is there a website that you use? my daughter has flare up since dec, dr put her on prednisone along with imuran but still has lots of pain and cramps. I am trying to find some allternative remidies to ease her pain. Thank you.
Reply posted for Lissette1515.
I took 6mp for years and then also remicade. 6mp showed no real results and I stopped it, but remicade was very effective, though it caused other problems such as psoriasis.
I'm curious about a few things though. What is LCN? Also, I am only on lialda right now (active ingredient mesalamine). I was lead to believe that it wasn't the same as 6mp, but is it the same as those immunosuppresents?
And is there new information on the corrolation between cancer and taking these types of meds? I know that there is the possiblity, but I haven't read of any more info on it. This is one the things that really scares me because I was on 6mp and remicade for a long time.
Reply posted for Lissette1515.
Good to hear he is doing better. Too much fruit always messes me up and orange juice falls into the acidic group which can cause issues too.
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