I've been dealing with UC since I was pregnant with my daughter. Just kind of popped up at the end of pregnancy in August 2011. I'm also a healthcare professional. I've been a medical assistant for four years now & a nursing student for 2 years but all that had to be put on hold because I couldn't leave my bathroom. It is the most frustrating disease. I am the most driven & positive person I know but this disease has beaten me down & on some days it steals my self worth right from under me. I haven't been in remission since being diagnosed. The medicines help for a little while but ultimately I still end up doubled over in pain on the toilet and there is ALWAYS blood.
I miss my patients, my career, my schooling, my life. I'm hoping to go back to school in January. I've been started on a new daily steroid. It helps for a few days but then I'm bloated, in pain & in the bathroom. I try to find strength in my children, husband and I wish I could say family but my family is in denial. It is truly an isolating disease. I've never felt so alone in something as I do in this. No one understands & everyone around me feels helpless when I'm experiencing the symptoms. I don't want peoples pity. I'm just so surprised that there isn't a better way to treat this disease. We can transplant multiple organs & grow organs on mice but we can't make a colon or transplant the large intestine. It blows my mind.
I just wanted to let you know that you are not alone. I understand the drive to succeed & to advance in life. I want to be a nurse midwife, which is a masters in nursing and I refuse to let this stop me. If you need to chat I'm here.
Looking for support near or in Sayre, PA. Send me an email taurusariescusp@gmail.com or look me up on FB.
Hang in there. Love, peace & compassion.
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