Community Forum

Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.

Advice - crohns ??

Tue, October 31, 2023 10:55 AM

1990 - found stricture while testing for anemia - b12 shots taken to fix anemia
sever pain 1 or 2x a year... no meds taken Dr's said as long as pain not to bad and working, not to worry about it....

2019 - surgery to remove painful stricture - surgeon says looked like Crohns. No other crohns seen in intestines... just the 30 yr old stricture

surgery - ilieum, cecum, taken out so no valve - diarrhea terrible. But... no pain :-)
have not been back to GI doctor.... GI prior to surgery did colonoscopy said all looked good see you in 10 years.

Liquid brings on the bouts of diarrhea... if I go to town or have any away from home time.... no eating or drinking until home and close to bathroom.

No GI doctors close so 90 miles one way for a visit - as they provided no help for 30 years and even prior to the surgery.... might say I have an aversion to them..... also.... sugery did not go well... was a long recovery and 1 surgery scheduled - took 2 more to fix what went wrong with the 1st one..... surgeon just said I must have been sicker than they thought??? resection spung a leak so 2nd surgery was to fix it, leak happened less than 24 hrs after 1st- that was the one that set me back and had tough recovery, 3rd was to fix incisional hernia.... that went pretty smooth.

so.... 65yrs old, no meds - good health over all...... as the valve is gone..... is there anyway to slow down the liquid processing. I have not had a solid bowel since the surgery. I have no Crohns sysmtems other than diarrhea. No fistulas, etc. Surgeon diagnosis was based on what he saw of the strictured ileum.... said it looked like classic crohns... but bad... said what he took out was in bad shape. My intestins look fine......

should I keep putting up with the diarrhea.... all blood work shows I am tolerating it ok
or should I pursue meds to help slow all down?

thoughts and opinions appreciated :-)

rignit
Joined Dec 28, 2023

Related Topics

Joint pain

muleroof
Joined Sep 19, 2021

I've had migrating arthritic pains in th....

read more

eye redness

delaneysimone
Joined Oct 21, 2022

Has anyone experienced a condition called uveitis ....

read more

Recent flare advice

hannahporter
Joined Apr 28, 2024

Wondering if anyone's doctors allows them &quo....

read more

Welcome to the Crohn's & Colitis Community!

This website is associated with the Crohn's & Colitis Foundation.

Please read our Top 12 Rules before posting messages and sharing stories. Always be courteous and sensitive to others!

Intended audience. The Crohn's & Colitis Foundation Online Community is intended for patients and their caregivers, family and friends. The Community is not intended for industry representatives or advertisers and these individuals are not permitted to participate on the site.

Meet the Crohn's & Colitis Community! Browse our site to see what our community is talking about and find issues important to you.

Join in and share your stories. After you feel comfortable with our site, register to share your thoughts on a regular basis.

Stay secure. Remember that our site can be viewed by anyone on the Internet. With the exception of our registration and personal pages, search engines are available within this site. To guard your privacy, follow these simple rules: do not share your address, phone number, details about your family, or anything else you would feel uncomfortable with others reading. If you post your personal email, be aware that you may receive spam e-mail from spammers who gather addresses off of the web.

Read and react to posts with care. If you don’t agree or are offended by someone’s post, take a step back and think before you reply. Since we can’t talk in-person to each other, we must recognize that we may be misunderstanding stories or posts. Please be sensitive to others’ feelings and ask for clarification before acting out.

Search before starting new topics. To keep our message boards easy to use, please use the search bar to locate topics of interest before starting a new thread. If you start a new thread, please use obvious subject headings and words that will catch the attention of others. Topics will be archived after 21 days of inactivity. To view past topics and posts, click on archive topics within each of the forums.

Stick to our guidelines. To keep this site safe for everyone, please do not post: doctors' names, treatment facility names and treatment specifics, contact information for others without their consent, links to websites with uncertain content or advertisements, requests for fundraising, items for sale, requests for study, survey and/or questionnaire participation or provocative information.

Sharing photos. Please use good taste and appropriate images when adding photos to your profile or personal stories. Photos should be in .jpg format.

Not following the rules? Crohn's & Colitis Community moderators routinely scan the message boards and will delete tasteless posts. If you post inappropriate messages or pictures or use offensive language in a post on multiple occasions, you will be notified via email and your account will be inactivated.

Report foul play. Help the Crohn's & Colitis Community moderators by reporting anyone that posts inappropriate messages or pictures by clicking the 'Report Abuse' button under the message or emailing ccfacommunity@ccfa.org.

Questions or concerns? Please feel free to email us at ccfacommunity@ccfa.org with any questions or concerns. We want you to feel comfortable here.

Terms & Conditions. By posting your story, questions, concerns and other information on the Community, you grant the Crohn's & Colitis Foundation or its authorized agent permission to publish, reproduce, record and use your stories as Crohn's & Colitis Community or the authorized agent sees fit in any medium or forum in a manner which helps to further the Crohn's & Colitis Community mission. You agree to release and hold harmless Crohn's & Colitis Community from any and all liability by any third party that may arise from the release of information to any third party or by any third party and agree that all text and other content made by you, for you or the person for whom you are the parent/guardian, shall be the exclusive property of Crohn's & Colitis Community. The Crohn's & Colitis Community cannot verify every claim made by a third party contributor to our Community and is not responsible for the authenticity of information posted.

Thank you! The Crohn's & Colitis Community is successful because of members like you!

Thanks!
The Crohn's & Colitis Community Team

*Any postings on the Crohn's & Colitis Community site should not replace your physician's advice. Always check with your personal physician before taking any action regarding your health.