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Recent flare advice

Sun, April 28, 2024 9:35 PM

Wondering if anyone's doctors allows them "emergency" meds to keep on hand. Just got out of the hospital for the 6th time in 4 years with a partial or full bowel obstruction. It seems like steroids always do the job to fix. I would just love to avoid the ER in the future so wondering if anyone has had any experience with this?

hannahporter
Joined Apr 28, 2024

Tue, March 18, 2025 8:59 AM

Reply posted for PCW.

Many doctors do prescribe “emergency” meds for patients with recurrent bowel obstructions, especially if a pattern has been established where steroids help resolve the issue and avoid hospitalization. Some gastroenterologists will allow a short course of prednisone or another steroid to be kept on hand for flare-ups, but this usually depends on the severity of your condition and their level of comfort with at-home management.

It might help to have a conversation with your doctor about:

• A rescue medication plan (like a steroid taper)

• Signs of when to use it vs. when to go to the ER

•

gameofcrohns42
Joined May 11, 2023

Sun, June 02, 2024 1:04 PM

Reply posted for hannahporter.

My gastroenterologist prescribed last year a 90-day supply of Budesonide (270 capsules). He knew I could only tolerate a full dosage of meds for two weeks and would need to taper off the meds for 8 weeks. Luckily it worked. I went an entire year without a flare-up... until I got Covid. It wasn't Covid that initiated the flare-up, it was my severe allergic reaction to the anti-virus medication that kicked it into high gear. My immune system went into overdrive. Anyway, I called the doctor and he told me to use the remaining Budesonide (about 180 of them) from last year and instructed me to just repeat the process as I did before and to call him if there is an issue. To me, that was a nice way to address the flare-up without having to jump through hoops to get an appointment and get anything done. He gave me a new prescription for another 90-day supply as the old stuff was a couple months away from expiring. Oh, saved a lot using Good-RX verses Medicare buying the prescription. Now I have a back-up for at least another year or so. Best of luck. Stay healthy.

PCW
Joined Jun 2, 2024

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