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Lichen Sclerosus & Crohn's


Fri, February 28, 2025 10:39 PM


Looking to see if anyone else is dealing with lichen sclerosus and Crohn's.  Lichen sclerosus (LS) diagnosed by biopsy.  Topical steroids (Clobetasol, Fluorocinonide) are really not working.  I have now developed pustular psoriasis and plaque psoriasis as well. (Also have Sjogren's, Hashimoto's and Raynaud's, but not as bothersome).  
 Have been on Humira (or biosimilar) for 7 years. Treatment proposed for psoriasis is Wynzora (anhydrous calcipotriene and betamethasone dipropionate).  Yet another horrendously expensive drug.  The most bothersome of all these diseases is the LS.
I go to a gastroenterologist, dermatologist, gynocologist ,opthamologist and primary care (internal medecine) each of whom has prescribed a drug for their specialty area disease.
Any thoughts on LS in the universe of Crohn's? Despite the above, I am doing well, just really itchy.

FPO monarch14
Joined Sep 15, 2014

Wed, March 19, 2025 12:14 AM

Reply posted for kenny25.

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FPO kenny25
Joined Mar 19, 2025

Tue, March 18, 2025 10:17 PM

Reply posted for monarch14.

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Since you’re already seeing multiple specialists, consider advocating for a coordinated care approach. A primary care physician or a rheumatologist may be able to help coordinate treatment plans that consider all your conditions together.

FPO rogerpeters
Joined Mar 18, 2025