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Help! Unable to....

Sun, June 21, 2020 3:40 PM

So I have Ulcerative Proctitis and have been off of Mesalamine (Oral & Suppository) for about a year now due to moving, insurance problems, no doctors available in this small town, etc. Insurance in this town won't cover Mesalamine. It's been a nightmare. I finally went to ER last night after flaring for the past 2 months, unable to eat more than protein shakes and sometimes feeling well enough to get in a solid meal in, pain, bleeding, muscous, etc...and the doctors here are complete idiots! I explained what I have, and my Dr says...what is Proctitis? Then says there are no gastroenterologists at their hospital, and has to make phone calls to ask what kind of meds to give someone with Ulcerative Proctitis. Super frustrating. Anyways, he ended up prescribing me Torodol....has any doctors done that for any of you? I didn't think that was a medication for UC. I actually thought it wasn't supposed to be taken. Also, I don't have diarrhea like most people...I get constipated....and each time I really need to make a bowel movement, my muscles keep it from coming out so I just strain for ages and bleed a ton..do any of you experience this? What do you do for it?

jeagle91
Joined Jun 21, 2020

Mon, June 29, 2020 5:00 PM

Reply posted for jeagle91.

I can only speak as someone who has Crohn's, but I am currently going through the same bowel struggles that you are. My doctor recommended a Fleets Enema, which I had never done before. It wasn't the joyous relief that you would think it would bring, but it definitely did provide instant refief and was pretty easy/painless to do.

vablancato
Joined Jun 29, 2020

Mon, June 29, 2020 7:48 AM

Reply posted for jeagle91.

I am not a doctor and cannot five medical advice, but a quick search online does show that Torodol would seem to be not a drug used as treatment for UC and one with side effects that might make things worse.

I'm recentlty diagnosed with IBD and also not familiar with the term "Proctitis" but all doctors (not gastrointestinal necessarily) I have spoken to in personal life as well as treatments are familiar with the terms Ulcerative Colitis and/or Inflammatory Bowel disease so if "Proctitis" is another term for those conditions you may want to try using them.

For insurance issues more information of the insurance you are trying to use would be helpful to be able to help you navigate (or even country/state information etc). If you are in the US and have insurance, most insurers and hospital systems are offering virtual visit options over cell phone apps or computer video, and I would try calling your insurance to ask about at least getting a virtual consultation with a gastroenterologist doctor (you may need referral from primary care first depending on your insurance - but you should be able to primary care visit virtually too).

stephencapper
Joined Jun 28, 2020

Tue, June 23, 2020 5:28 PM

Reply posted for jeagle91.

Take a laxative

charbs
Joined Oct 31, 2016

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