Community Forum

Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.

Previous Topic Next Topic

Pain and gas with a j pouch

Sun, October 06, 2013 8:07 PM

After suffering for 12 yrs with UC, trying every medicine ,survey , blood transfusion and no relief Me Doc sent me the a surgen who remove my entire colon and built a j pouch from my small intestine.
That was over a year ago and I still have no quality of life. The pain and gas is never ending. The diease is brought on from stress for me i know that but I am not the type of person that get in under control.
I am on disability , but the doctors say there is nothin else they can do
the only thing that help the pin was pain meds , but they won't prescribe them anymore.

I have a
family to take of and the stress and quilt i feel every day because I am sick and cant do the things i want only cause my stomach to turn into knots , pain and gas
I have tried everything on the market , nothin helps. I have accidents if i levels the house its horrible.
I dont want to life like this , I have a wonderful supporting family and it's not for to them.
I have heard the smoking pot helps but i dont like the mental high it gives u and it's not legal in my state.
Need any advise at this point.Please

ccrawford62
Joined Sep 27, 2013

Thu, October 17, 2013 6:34 PM

Reply posted for ccrawford62.

I have been told that a lot of people like me end up with crohns. Unfortunately I dont have health ins right now so when I do get ins I will check into that. i just hate that everyday , all day I suffer with gas and cramping pains. I thought once They removed my colon and gave me the internal pouch I would feel better. But I dont!!

ccrawford62
Joined Sep 27, 2013

Wed, October 16, 2013 8:44 PM

Reply posted for ccrawford62.

have you had a pouchoscopy? sometimes people with UC are misdiagnosed and they actually have Crohn's. I would suggest getting another GI doctor's opinion. You should not have to suffer so much.

ashlygt
Joined Feb 8, 2013

Related Topics

IBD and trauma

Janeliza
Joined Apr 13, 2022

Hi all! I've had Crohn's since 2014 with m....

read more

Life Insurance?

Aperson1
Joined Dec 2, 2022

40 y.o. male looking to get life insurance. ....

read more

IBD and exercise/sport

JS25
Joined Aug 14, 2023

This is my first post. I am 28 and I was diagnosed....

read more

Welcome to the Crohn's & Colitis Community!

This website is associated with the Crohn's & Colitis Foundation.

Please read our Top 12 Rules before posting messages and sharing stories. Always be courteous and sensitive to others!

Intended audience. The Crohn's & Colitis Foundation Online Community is intended for patients and their caregivers, family and friends. The Community is not intended for industry representatives or advertisers and these individuals are not permitted to participate on the site.

Meet the Crohn's & Colitis Community! Browse our site to see what our community is talking about and find issues important to you.

Join in and share your stories. After you feel comfortable with our site, register to share your thoughts on a regular basis.

Stay secure. Remember that our site can be viewed by anyone on the Internet. With the exception of our registration and personal pages, search engines are available within this site. To guard your privacy, follow these simple rules: do not share your address, phone number, details about your family, or anything else you would feel uncomfortable with others reading. If you post your personal email, be aware that you may receive spam e-mail from spammers who gather addresses off of the web.

Read and react to posts with care. If you don’t agree or are offended by someone’s post, take a step back and think before you reply. Since we can’t talk in-person to each other, we must recognize that we may be misunderstanding stories or posts. Please be sensitive to others’ feelings and ask for clarification before acting out.

Search before starting new topics. To keep our message boards easy to use, please use the search bar to locate topics of interest before starting a new thread. If you start a new thread, please use obvious subject headings and words that will catch the attention of others. Topics will be archived after 21 days of inactivity. To view past topics and posts, click on archive topics within each of the forums.

Stick to our guidelines. To keep this site safe for everyone, please do not post: doctors' names, treatment facility names and treatment specifics, contact information for others without their consent, links to websites with uncertain content or advertisements, requests for fundraising, items for sale, requests for study, survey and/or questionnaire participation or provocative information.

Sharing photos. Please use good taste and appropriate images when adding photos to your profile or personal stories. Photos should be in .jpg format.

Not following the rules? Crohn's & Colitis Community moderators routinely scan the message boards and will delete tasteless posts. If you post inappropriate messages or pictures or use offensive language in a post on multiple occasions, you will be notified via email and your account will be inactivated.

Report foul play. Help the Crohn's & Colitis Community moderators by reporting anyone that posts inappropriate messages or pictures by clicking the 'Report Abuse' button under the message or emailing ccfacommunity@ccfa.org.

Questions or concerns? Please feel free to email us at ccfacommunity@ccfa.org with any questions or concerns. We want you to feel comfortable here.

Terms & Conditions. By posting your story, questions, concerns and other information on the Community, you grant the Crohn's & Colitis Foundation or its authorized agent permission to publish, reproduce, record and use your stories as Crohn's & Colitis Community or the authorized agent sees fit in any medium or forum in a manner which helps to further the Crohn's & Colitis Community mission. You agree to release and hold harmless Crohn's & Colitis Community from any and all liability by any third party that may arise from the release of information to any third party or by any third party and agree that all text and other content made by you, for you or the person for whom you are the parent/guardian, shall be the exclusive property of Crohn's & Colitis Community. The Crohn's & Colitis Community cannot verify every claim made by a third party contributor to our Community and is not responsible for the authenticity of information posted.

Thank you! The Crohn's & Colitis Community is successful because of members like you!

Thanks!
The Crohn's & Colitis Community Team

*Any postings on the Crohn's & Colitis Community site should not replace your physician's advice. Always check with your personal physician before taking any action regarding your health.