school
Sun, January 27, 2008 9:55 AM
My son is 16 years old and has had a rough year in 10th grade. He has been absent more than he has been in school and is feeling so overwhelmed with make-up work and being behind, that I think it is affecting his health overall. He also had mono which put him in bed for 2 months and problems with his Crohn's since Zelnorm is no longer on the market...If anyone has any suggestions or information on what they did for high school, I would appreciate any input.
Thanks - Robin
Joined Mar 7, 2008
Fri, March 21, 2008 4:39 PM
Reply posted for rkbw.
Hi. I'm a lawyer and Crohn's patient, and founder and Executive Director of Advocacy for Patients with Chronic Illness.
There's a template section 504 plan on a link here http://www.ccfa.org/kidsteens/?LMI=8. I wrote it with 2 psychologists and a social worker. It covers everything we could think of that might be needed by a kid with IBD. You can print it out and pick the items that your child needs.
If you have other questions, you can email me at patient_advocate@sbcglobal.net. J
Joined Mar 21, 2008
Mon, March 10, 2008 10:54 AM
Reply posted for jenfox.
Thanks so much for the suggestion of fish oil tablets. I am experiencing my first flare-up, which has been going on for about 6 weeks now (diagnosed with Crohns about a year ago). And yes, I'm at my wits end. Hospitalized two weeks ago, missed a lot of work, tired all the time...blah, blah, blah. I am going on vacation in two weeks to the Carribean and sooo want to feel better by the time I leave. I hope the fish oil works. Thanks again for the suggestion.
lcubblerJoined Mar 10, 2008
Sat, February 23, 2008 1:00 AM
Reply posted for rpettywoods.
I recently learned about in some school district they offer a teacher to come to the students home while they are out to teach them and keep them up to the standards and to help with makeup lessons. It was brought up to me when a kid was out for a few weeks and had to stay home...
Another option could be home- school, at the school district I attended the home-school program you are given your work from a teacher and you attend class once a week. I am in college and I have been taking the slow path to graduation but I sign up for one class a week and even then I dont always make it but I attend when I can and when I am feeling good I do my school work.
But as also posted if you can explain your situation to your childs teachers they will most likely be understanding and work with you to make sure your child succeeds.
My mom has been a teacher for over 20 years and I have grown up around them and know that most of them are people that you would want to be friends with and would do anything to help.
Over all tell him to keep his head up and hang in there... I have found that my condition is on a lighter side than it could be and I dont know what he is going through but stress is definitally not what the doctors want. That will only make it worse and then he will really miss more school.
Joined Oct 23, 2008
Thu, February 07, 2008 6:45 AM
Reply posted for rkbw.
Make sure to get a 504 plan. Ask your guidance office about this. this will be on record so that you child will not suffer undue consequences from teachers. this protects him from being discriminated because of his disease and sets up a guideline for teachers to follow. I also makesure that at the beginning fo every year, I write a letter to each teacher explaining everything down to my son's need to maybe put his head down during class. Most teachers are willing to bend over backwards to accomodate him, as long as he shows sone kind of effort when he is feeling well.I also keep in touch with them through email. i also remember to thank them over and over again for their patience. Kindness goes a long way
Joined Mar 7, 2008
Mon, January 28, 2008 7:25 PM
Reply posted for rkbw.
Robin,
My 10th grade daughter was diagnosed just a few months ago with Crohn's and has missed a lot of school. Fortunately I met with school administrators, counselors, and all of her teachers and provided a mountain of documentation on her condition. They were very supportive and have made accommodations to ensure that school does not pose additional stress for her. They provided a second set of books for her to keep at home and also offered a teacher to come to school for extended absences. We have a note on file at the school from two different doctors explaining that she may have continued, unplanned absences due to her condition.
Hope this helps...good luck.
Roberta
Joined Mar 7, 2008
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