I recently learned that my 16 year old son has Crohn's ! After 10 month's of testing, procedure's, blood work and medication, the out come of it all has devastated my family. While mom, dad and son try to make some since of this while continuing to live a normal life, we still yet just can't figure things out. The flare ups are so unpredictable and hard to manage. I watch my child in discomfort and, pain and confusion and all I can do is be strong for him. My breaking downs are very silent when every one is asleep; I'll go in my room, close my door and just have a melt down. Can anyone please tell me how to cope?
Reply posted for elysew.
I have walked in similar shoes...I used to take a hot shower and simply sob. It is heartbreaking to have a child dx we all as parents want what's best for them and I felt so helpless. After the pity party I mustard up the strength to gain control; I surrounded myself with literature, read everything I could get my hands on, went to support group meetings, met with a nutritionist and began the daunting task of deciphering which foods were agreeable to my girl and which weren't. Our nutritionist had me start a food diary. This all happened nearly 10 years ago. Liz is going to be 14 in January and I can't begin to tell you about our journey. There were very trying times but the good days finally outweigh the bad. Keep the faith, seek professional assistance (we met with our gi's social worker), and realize this condition has been brewing for some time that it will take a bit of time and patience but it treatable. Look into sending him to Camp Oasis, that is the single best thing I have done to date. My daughter has made very close relationships there and now knows she isn't the only one, she feels she belongs.
I was diagnosed in October of 2020 with Ulcerative....
read more
Nursing forming affiliations wrap a wide pack of h....
read more