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Total Proctocolectomy

Wed, January 18, 2023 3:19 PM

Hi, I have had an ileostomy since 2011, when I was 9 yrs old. I'm now in my last year of university and have to have a full proctocolectomy. 
I was wondering if anyone whose had to have one can let me know their expereince with it, the recovery, any complications (especially from females).
As well as any advice, I plan to graduate in the spring so I'm really trying to not let this affect that. 

FPO rams01
Joined Jan 18, 2023

Sat, March 18, 2023 1:43 PM

Reply posted for rams01.

You will receive general anesthesia right before your surgery. You will be asleep and unable to feel pain.

For your proctocolectomy:

  • Your surgeon will make a surgical cut in your lower belly.
  • Then your surgeon will remove your large intestine and rectum.
  • Your surgeon may also look at your lymph nodes and may remove some of them. This is done if your surgery is being done to remove cancer. 

Next, your surgeon will create an ileostomy:

  • FPO gameofcrohns42
    Joined May 11, 2023

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