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Issues after complete surgery

Sun, February 25, 2024 6:00 PM

Hello,

I have had all 3 surgeries to complete my J-Pouch. This April will be 2 years since the last surgery. I have been having excruciating abdominal pain off and on every few weeks to a month. The only thing that seems to help is antibiotics. I can’t keep taking antibiotics. Has anyone else gone through this and can recommend a solution?

My other issue is I go 6 to 10 times a day and it takes a minimum 20 minutes on the toilet. Sometimes it has taken over an hour. Any suggestions would be greatly appreciated. I am basically stuck in my house because I have to have access to a bathroom at a moments notice. Sometimes there is urgency so I need an open bathroom.

Any advice, suggestions would be greatly appreciated as my GI and surgeon haven’t seen all these issues at one time. My GI is recommending biologics. There has to be someone out there going through what I am going through to help me.

Thank you,

Rolo

Rolo
Joined Feb 25, 2024

Sun, April 21, 2024 1:43 AM

Reply posted for kanecharles.

It sounds like you are going through a lot with your J-Pouch surgeries. I'm not a doctor, but it's important to communicate your concerns to your healthcare team. In the meantime, you may want to consider seeking a second opinion from another specialist who has experience with J-Pouch surgeries. It's also helpful to connect with support groups or time calculator online communities where you can find others who have gone through similar experiences and can offer advice and support. Take care.

kanecharles
Joined Feb 20, 2024

Tue, February 27, 2024 7:58 PM

Reply posted for administrator.

Thank you for the info. I was hoping to find someone that has gone through this that could tell me what worked for them. Maybe someone will read my post and be able to help. In the meantime I’ll check out what you provided.

Rolo
Joined Feb 25, 2024

Tue, February 27, 2024 12:02 PM

Reply posted for Rolo.

Hi Rolo,

Sorry to hear you are going through this. You are doing the right thing by keeping your surgeon and GI updated on your symptoms. We have a few resources for you to review if interested:
1. J-pouch webpage: J-Pouch Surgery | Crohn's & Colitis Foundation (crohnscolitisfoundation.org). This also includes a video and other information.
2. We have a Facebook group for J-pouch patients with IBD, here: (20+) Crohn's & Colitis Foundation J-Pouch Support Group | Facebook

If biologics are a new consideration that your doctors are proposing, here is some information that can help: www.ibdmedicationguide.org

administrator
Joined Oct 12, 2017

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