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Teen Colitis


Tue, August 31, 2010 11:14 PM

I have a 14 year old who has colitis.  Currently he is on a lot of medications, which I try my best to be around to watch him take them.  Even though he knows the consequences if he does not take his medicine, there are times when I found the medicine down in his bags, etc.  After his last hospital stay, he promised to take all of his meds.  Well he recently started high school, and the worst thing happened.  Diarrhea.  He had on shorts, therefore it was running down his leg during the changing of classes.  The PE teacher helped him and supplied him with shower suppplies.  But needless to say, he doesn't want to go back to school.  He is a Freshman at a new school.  Can you imagine?  The past 2 days he's been saying his stomach hurts, so he doesn't have to go to school.  In my heart, I don't think it hurts, but I am not positive. I think he is truly embarrassed.  Which I truly understand.  Has anyone had to deal with this issue?

FPO terp93
Joined Aug 31, 2010

Fri, October 15, 2010 4:23 PM

 Reply posted for terp93.

Hi

I am also the mother of a 14 year old Freshman with UC.  I am so sorry your son had that experience.  This sounds horrible, but it truly can save from embarrassment - depends.  I have a friend whose daughter has Crohns and she wears them almost daily to avoid embarrassing situations.

My daughter's school has been very good working with us.  At the beginning of each school year, she gets a laminated pass that gives her free access to the bathroom, health room and guidance office.  Her teachers were notified by guidance at the beginning of the school year, so she doesn't need to ask, she just goes when needed.  (The pass is mainly for when she is in the hallway.)  The time saved by not having to ask can also make a great difference in preventing an accident.

I hope your son finds himself in remission soon - we haven't been that fortunate yet.

If either would like to chat, you can email us at onedreamer@juno.com

Sometimes talking to someone who understands can make a positive difference.

FPO momofmouse
Joined Jul 2, 2009

Wed, September 29, 2010 2:06 PM

 Reply posted for terp93.

Hi There,

I am so sorry to hear what your son had to go through. I have a 14 yr old daughter who just started high school also, it is not easy. I spoke with the school nurse and I e-mailed every teacher. When she has to use the bathroom she just leaves class no questions asked. If she misses school I e-mail the teachers and the nurse or if she is just feeling like crap the nurse has been great to have a direct contact with.It is hard enough to deal with this illness let alone being a teenager to. My daughter is quite sick right now and taking alot of medication and suffering many side effects from it. We just found out she has UC a few months ago. I am trying to get her to talk with other teenagers with UC so she does not feel so alone, I also got her to write about stuff in a journal, some days she is so mad about being sick so it helps get some anger out. All I can say is I know how you feel, I just wish I had some answers.

FPO momcat
Joined Sep 29, 2010

Wed, September 01, 2010 12:00 AM

 Reply posted for terp93.

My daughter got colitis when she was 16 in 11th grade.  It just brought tears to my eyes reading about your son and how that happened to him.  I think if this were my child, I'd go into the counselor's office and explain the whole situation.  I think I'd want a 504 plan to protect my child also.  He should be able to just leave the class when he needs to without raising his and for permission.  I think your son will be taking his meds now, right?  My daughter is on Lialda, Azathioprine.  She also takes a probiotic that has helped her so much called Ultimate Flora Critical Care 50 Billion.  She also takes her vitamins:  Women's One a Day, Oscal and a Cranberry supplement.  She really watches her diet.  Her IBD specialist said many UC patients have bacteria overgrowth.  He wants her to stay away from foods that have added sugars or process into sugars:  no processed foods, no junk foods, no greasy foods.  I can tell you that probiotic has helped her out of a flare.  I really feel badly for your son.  I wish he'd come on this website and see that he is not alone.  Please post with updates on how he is doing.

FPO ez
Joined Nov 9, 2008

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