Community Forum

Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.

Previous Topic Next Topic

mommy, make it go away...

Sun, February 20, 2011 2:00 PM

dear all,

My daughter was diagnosed with UC when she was 4 years old, she has been on many different meds till she was put on imuran she did well for a year till she had a flare up in december and till now she is suffering from great pain, and misses many school days.she is 8 now and really aware of her illness but after this last flare up she started to get really angry and sad. It breaks my heart when she tells me mommy i hate UC make the pain stop, why me? I try to be strong but I feel really guilty when i just stand in front of her so week and just cant do anything. what do i do to help her throught this tough times?

Thanks.

necla
Joined Feb 20, 2011

Thu, March 10, 2011 7:54 PM

Reply posted for Necla.

Our dear children...it truly is heart wrenching!!! When my son (9) feels bad...we play the "3 things that could be worse" game. We name three things...especially when we go to the hospital and we see some dear children that cannot walk, eat or talk on their own.

We all go throught the "Why my child!!!!" too and through support groups and the wonderful Oasis camps (we started with the FAMILY CAMP) that really made us all feel soooo much better. The kids were able to meet other children and we as parents had many opportunities to meet and speak with other parents...such a wonderful experience!!!

victorsmom
Joined Feb 17, 2010

Fri, March 04, 2011 11:44 PM

Reply posted for greergrace.

Hi! I can't wait for my girl to go to the camp!!! She is really looking forward to it, I just mailed everything out today. thanks!

sraymom
Joined Jun 28, 2010

Fri, March 04, 2011 12:55 PM

Reply posted for sraymom.

Camp Oasis was a true blessing for my son. He had a wonderful time, made a lot of new friends and came home with a whole new outlook of how to deal with his Crohns. I can not say enough good things about Camp Oasis!

greergrace
Joined Mar 4, 2011

Sun, February 20, 2011 6:06 PM

Reply posted for Necla.

Hi there, my daughter was diagnosed at 8 (she is now 11) and she definitely felt "different" and got really sad too. I bought her the book Toilet Paper Flowers and got her connected to another girl with Crohn's from CCFAs Power of Two program (you can email them or call them about being matched up with another child for yours). Camp Oasis is supposed to be a HUGE help for kids (my daughter is going for the first time this year). I think connecting them (and you) with other families is such a big part of getting through things and dealing with the disease. I used to give my daughter Tylenol and a heating pad and that helped. If she is having a lot of pain, perhaps her symptoms are not in control? Also, Nexium helps my daughter big time with stomach pain. Sometimes it's too much stomach acid making pain too. It is really awful to not have anything to really say to our kids, I know just what you mean. I hope this helps.

sraymom
Joined Jun 28, 2010

Related Topics

Trying to support my husb...

jessers
Joined Mar 1, 2022

Hi, My husband is 46 and was diagnosed in 2019 ....

read more

Legal system

Kimdanon1
Joined Apr 20, 2024

My son has Crohn's and is currently in jail. T....

read more

Buying Crystal Meth Onlin...

borislane123
Joined Apr 28, 2024

Buy Crystal Meth Online, Buying Crystal Meth Onlin....

read more

Welcome to the Crohn's & Colitis Community!

This website is associated with the Crohn's & Colitis Foundation.

Please read our Top 12 Rules before posting messages and sharing stories. Always be courteous and sensitive to others!

Intended audience. The Crohn's & Colitis Foundation Online Community is intended for patients and their caregivers, family and friends. The Community is not intended for industry representatives or advertisers and these individuals are not permitted to participate on the site.

Meet the Crohn's & Colitis Community! Browse our site to see what our community is talking about and find issues important to you.

Join in and share your stories. After you feel comfortable with our site, register to share your thoughts on a regular basis.

Stay secure. Remember that our site can be viewed by anyone on the Internet. With the exception of our registration and personal pages, search engines are available within this site. To guard your privacy, follow these simple rules: do not share your address, phone number, details about your family, or anything else you would feel uncomfortable with others reading. If you post your personal email, be aware that you may receive spam e-mail from spammers who gather addresses off of the web.

Read and react to posts with care. If you don’t agree or are offended by someone’s post, take a step back and think before you reply. Since we can’t talk in-person to each other, we must recognize that we may be misunderstanding stories or posts. Please be sensitive to others’ feelings and ask for clarification before acting out.

Search before starting new topics. To keep our message boards easy to use, please use the search bar to locate topics of interest before starting a new thread. If you start a new thread, please use obvious subject headings and words that will catch the attention of others. Topics will be archived after 21 days of inactivity. To view past topics and posts, click on archive topics within each of the forums.

Stick to our guidelines. To keep this site safe for everyone, please do not post: doctors' names, treatment facility names and treatment specifics, contact information for others without their consent, links to websites with uncertain content or advertisements, requests for fundraising, items for sale, requests for study, survey and/or questionnaire participation or provocative information.

Sharing photos. Please use good taste and appropriate images when adding photos to your profile or personal stories. Photos should be in .jpg format.

Not following the rules? Crohn's & Colitis Community moderators routinely scan the message boards and will delete tasteless posts. If you post inappropriate messages or pictures or use offensive language in a post on multiple occasions, you will be notified via email and your account will be inactivated.

Report foul play. Help the Crohn's & Colitis Community moderators by reporting anyone that posts inappropriate messages or pictures by clicking the 'Report Abuse' button under the message or emailing ccfacommunity@ccfa.org.

Questions or concerns? Please feel free to email us at ccfacommunity@ccfa.org with any questions or concerns. We want you to feel comfortable here.

Terms & Conditions. By posting your story, questions, concerns and other information on the Community, you grant the Crohn's & Colitis Foundation or its authorized agent permission to publish, reproduce, record and use your stories as Crohn's & Colitis Community or the authorized agent sees fit in any medium or forum in a manner which helps to further the Crohn's & Colitis Community mission. You agree to release and hold harmless Crohn's & Colitis Community from any and all liability by any third party that may arise from the release of information to any third party or by any third party and agree that all text and other content made by you, for you or the person for whom you are the parent/guardian, shall be the exclusive property of Crohn's & Colitis Community. The Crohn's & Colitis Community cannot verify every claim made by a third party contributor to our Community and is not responsible for the authenticity of information posted.

Thank you! The Crohn's & Colitis Community is successful because of members like you!

Thanks!
The Crohn's & Colitis Community Team

*Any postings on the Crohn's & Colitis Community site should not replace your physician's advice. Always check with your personal physician before taking any action regarding your health.