Three children with Crohns
Sat, March 26, 2011 8:21 AM
Hello I am the mom of a 27 yo, 21 yo, 16yo who all have crohns. I know it is said to be hereditary but come on. My husband was diagneosed in his 30s with it. the 16 year old is in the process but the colonoscopy shows the inflammation , he has the symptoms just waiting biopsies, but if it walks like a duck well you all know the saying. I am just wondering does anyone else out there have multiple children with this? They (the kids) handle it so well but i think mom is having a melt down.
Joined Mar 26, 2011
Fri, April 08, 2011 2:25 PM
Reply posted for Mom2One.
Dear Mom.. your right it does suck the life out you at times... i cry in the shower, or when home alone then pick my self up and deal . this has really been a great help this time because my third was just diagnosed this last month and venting and hearing all the comforting words from this site has made a difference. We just had insurance changes as well and the medications are a fortune... so i have been spending time finding alternative ways to pay for meds. People should know that for Humira injections even if you have insurance that humira has a program that will pay up to 500 a month after your copays... and if your child is taking entorcourt which does not sell the generic int he states you can order through a canadian drug store..for what was for us less than half of what using our insurance in the states covers. i dont know about the other meds like pentasa or asacol as our insurance just changed and we were spoiled with such good coverage before. We all need to hang in there because we need healthy children. thanks for your support. 
Joined Mar 26, 2011
Thu, April 07, 2011 4:39 PM
Reply posted for CarolM.
oh gosh...I cannot imagine how you feel. I know the last thing you would want is pity 
so I hope I am not coming across that way!
I have one child with UC and it sucks the life out of me, I cannot imagine what it is like having 3 kids with the same disease. I take antidepressants to try to cope with it all. I hope you have found ways to deal with the stress
Joined Dec 5, 2010
Sat, March 26, 2011 9:35 AM
Reply posted for Lizzies Mom.
Thanks lizzies mom. ur right I am hanging in there. It is in the family on the husbands side and i am guessing my side too although not confirmed. My colonoscopy coomes this year with turning 50 and all so I am curious to see what will be seen. I only meltdown in private. the kids are encouraged to always pop back to normal as soon as they can no sitting around feeling sorry for themselves i need a lesson in that this weekend. thanks for the encouragement.
Joined Mar 26, 2011
Sat, March 26, 2011 9:29 AM
Reply posted for CarolM.
Don't have a meltdown mom, they all need you. There are lots of families just like yours. I had never heard of the disease until my 2nd daughter was diagnosed. It wasn't until 5 yrs later that I was diagnosed. Then the pieces of the puzzle started to fall into place, and I was able to track the disease into my own early childhood. However, back then, the docs didn't have the knowledge/tests available to them and they treated the symptoms and not the disease. Since that time, I was brought to the conclusion that my grandmother and her mother were afflicted w/CD too, they just had no idea. There are studies that genetics play a huge role, however, it is a roll of the dice.......her sister has been tested and is CD free. Stay strong.
Lizzies Mom
Joined Sep 9, 2009
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