Community Forum

Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.

Side Effects, Or Something Else?


Mon, May 09, 2011 9:09 PM

My daughter has tried the SCD Diet, and every oral medication you can think of, she has suffered Kidney Stones and C-Difficile and has had a very tough year. She became very sick again in February so we decided to start Remicade, she has had her 3rd treatment about a month ago and then was taken off all of her other oral medication (Prednisone, Colazol)

She had been loosing her hair before she actually started Remicade but the last week a few other things have happened.....orange stools....pain and sick feeling is back, she is so tired all the time and her eyes have been bothering her and I noticed that the top lashes on one eye are all gone...what is happening??

Anyone who has had anything simular I would really like to hear from you.

 

FPO momcat
Joined Sep 29, 2010

Thu, May 12, 2011 11:21 AM

 Reply posted for Momcat.

yikes...I am sorry to hear all you have been dealing with!  How scary!

Has she had any recent blood work?   Definately get in to see her Dr.  Hang in there....I know it's hard (I have a 12 yr old with UC)

FPO mom2one
Joined Dec 5, 2010

Tue, May 10, 2011 9:12 PM

 Reply posted for Momcat.

Agreed.  This warrants a visit to the MD.  I know she's probably sick of that but you want to be ahead of the situation instead of chasing it.....


Hugs & good thoughts......

Claire's Mom

FPO azmom
Joined Jul 20, 2009

Tue, May 10, 2011 8:11 AM

 Reply posted for Momcat.

Momcat- No experience with Remi.  Malnutrition might be the culprit for hair loss.  Ask to have her levels checked.  Never hurts to cover all possibilities.

Wendy

 

FPO breezy
Joined Jan 5, 2009

Related Topics

Trying to support my husb...
Author Image jessers
Joined Mar 1, 2022

Hi, My husband is 46 and was diagnosed in 2019 ....

read more

Legal system
Author Image Kimdanon1
Joined Apr 20, 2024

My son has Crohn's and is currently in jail. T....

read more