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Lichen Sclerosus & Crohn's


Fri, February 28, 2025 10:39 PM


Looking to see if anyone else is dealing with lichen sclerosus and Crohn's.  Lichen sclerosus (LS) diagnosed by biopsy.  Topical steroids (Clobetasol, Fluorocinonide) are really not working.  I have now developed pustular psoriasis and plaque psoriasis as well. (Also have Sjogren's, Hashimoto's and Raynaud's, but not as bothersome).  
 Have been on Humira (or biosimilar) for 7 years. Treatment proposed for psoriasis is Wynzora (anhydrous calcipotriene and betamethasone dipropionate).  Yet another horrendously expensive drug.  The most bothersome of all these diseases is the LS.
I go to a gastroenterologist, dermatologist, gynocologist ,opthamologist and primary care (internal medecine) each of whom has prescribed a drug for their specialty area disease.
Any thoughts on LS in the universe of Crohn's? Despite the above, I am doing well, just really itchy.

FPO monarch14
Joined Sep 15, 2014

Mon, August 18, 2025 10:29 PM

Reply posted for richardjohns.

I’ve found some relief from the mental spiral (especially at night when symptoms act up) by zoning out with simple games. Lately Space Waves has been my go-to — just enough of a distraction without being overstimulating.

FPO richardjohns
Joined Aug 18, 2025

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