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Ulcerative colitis

Tue, November 08, 2016 3:33 PM

I was told back in April that I havery ulcerative colitis. MY question is I have had 2 colonoscopys in the last 6 months and my bleeding has slowed down and pretty much stopped I'm on a pretty high dose of prednisone and a medicine called meslamine. I take the meslamine 2 pills 3 times a day and it does not seem like it's working. Although my bleeding has stopped my bowl movements are still pretty much the question is do I need to see about a different medicine or does it take a long time for the medicine to start working. I mean it seems like every 3 mnths my colitis becomes active again. Any suggestions would be appreciated.

FPO adam bender
Joined Nov 8, 2016

Wed, April 17, 2019 9:11 PM

Reply posted for adam bender.

The medicine sounds like it is working. I am on the same medicines. The bleeding is the concern for me and it has stopped. I have had colitis for over 20 years and am allergic to the main ingredient in all the other medicines. You will not ever stop having urgencies unless you go into remission. Some days are good and then out of nowhere you start back up. I went into remission for over 5 years with maybe 1 or 2 flare ups a year. I do t know of a medicine that will completely stop the symptoms. I do know that a good diet will help. I still have a lot of bad days and have to plan around my urgencies sometimes. Most of the medicines I have tried seem to control bleeding but the cramps and urgencies never totally go away. Keep reading literature and talking to people and don’t let this colitis get you down.

FPO Billybob
Joined Apr 17, 2019

Tue, March 14, 2017 6:45 PM

Reply posted for adam bender.

Adam - It's definitely something to talk over with your doctor.  Prednisone and mesalamine (Asacol/Rowasa/Pentasa/etc) are a very mild set of meds.  There are definitely a number of much more aggressive treatments which quiet the disease, and you can begin those in gradually increasing strengths.  If you're doing fairly well, but it's just coming back, then you may also want to just let it be.  It can get far worse than that.  The other treatments can be started when the flareups get really bad.  But that's between you and your doctor.  But definitely something that sounds like you should be just starting to consider.

FPO gcrawford
Joined Mar 14, 2017

Thu, March 09, 2017 9:05 AM

I find that when I have a UC flare, it goes away more quickly if I increase the dose of mesalamine I'm taking in pill form and combine that with a mesalamine enema at bedtime. 

FPO uc guy
Joined Mar 9, 2017

Sat, January 07, 2017 1:20 AM

 Reply posted for adam bender.

I had ulcerative colitis for years and eventually had a Koch Pouch surgery in my 30s, which was the best thing I ever did.  I did have one long period of remission (about 8 years) in my 20s, which I now attribute to marijuana use at the time.  When I went back to college at age 30, my UC came back with a vengeance.  Thus, the surgery.  Following surgery, I would get inflammations in the pouch, which I had to treat with antibiotics.  When medical marijuana became legal in my state, I started using again when I went to bed each night.  I have not had an inflammation in 3 years.  Most doctors are not open to marijuana as there has not been much research due to the legal issues preventing it.  All I can say is that it has helped me tremendously.  I'm 65 and definitely not a "stoner."  You may want to consider it. 

FPO indialogue
Joined Nov 29, 2014

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