Get checked for gluten intolerance
Sat, June 07, 2014 6:57 AM
I suffered with colitis for many years. I also had other symptoms, namely join pain, muscle pain, shortness of breath and ADHD - all of which I told to every one of the nine specialists I have seen over the years. Not one of them thought to test me for Celiac despite the fact that all the problems I had were classic symptoms of the disease. As it turned out, I do not actually have Celiac but I am gluten intolerant - which has the same symptoms.
After three weeks on a gluten free diet all my symptoms cleared up - including my colitis.
If you have similar symptoms to me, I suggest you try a gluten free diet and see if it helps. There are plenty of web sites on Celiac, gluten intolerance and diet plans.
Please pass the message on because, incredible though it may seem, the medical specialists do not seem to be aware of the link between IBS, colitis and gluten intolerance.
Also posted in the treatment forum
fredastburyJoined Jun 7, 2014
Mon, July 21, 2014 7:51 PM
Reply posted for ambari.
Reply for ambari
Hello,
If gluten is the problem, you should be able to have soy. I have a soy milk smoothie every morning. Just be very careful when you try gluten free. Look on the internet to find lists of foods with gluten and what you can eat safely. Be careful of prepared foods such as meatballs or fried food that would have bread crumbs, or soups and other foods with flour. Check all labels to make sure there's no wheat, barley or rye. I used to have a big problem with dairy, but now that my GI system is working, I can digest dairy, including my favorite - ice cream! Good luck, I hope it works for you.
Joined Jul 14, 2014
Sat, July 19, 2014 10:42 PM
Reply posted for imfree.
wow! i am so inspired! thank you for your posts!! i will try gluten free diet immediately. Quick questions, i thought soy was not bad for us. when i say soy i think of what i eat and drink. Soy nuts, edemame, soy milk, protein bars w soy....are we on the same page? please educate me :)
Joined Apr 3, 2014
Mon, July 14, 2014 6:38 PM
Reply posted for fredastbury.
Hello,
I've had UC for 20 years. My symptoms were really bad and it was rarely under control. I was anemic for years, often had a very high ESR (> 100), and had various vitamin deficiencies. I though the anemia was due to UC, but in 2012, I found out I had Auto Immune Hemolytic Anemia (AIHA). Anyway, after years of suffering, and last year on high dose steroids for 10 months and Rituxan to get rid of the AIHA, I feel like I have a new life! It all changed when I completely stopped eating gluten, which I started when I got off the steroids. I was so worried the AIHA would come back, and I never wanted another steroid again. My doctor didn't know what caused the AIHA, but I had a feeling it came on from having out of control UC for so long. I had relief from UC within a few days of being gluten free. I was no longer spending hours in the bathroom. All the bleeding, pain, cramping, and exhaustion have been gone for 7 months now. I have energy again, and I feel like my old, younger self again. I've lost weight and my hair has grown thick again, and I'm 53 years old. I urge anyone with UC to at least try gluten free for one week to see if it helps, but you have to read every food label. It took me 2 months of thinking I had been gluten free to realize from a food diary that some things I ate did have gluten in them (and that's when I had been sick over those 2 months).
I do have very mild UC symptoms if I don't take my Asacol HD, but I take only 2 pills a day instead of 6. My UC symptoms now are so minimal compared to what I had when I ate gluten. I hope this information is helpful.
Joined Jul 14, 2014
Sun, July 06, 2014 8:08 PM
Reply posted for fredastbury.
Hi, I have Crohns and also found out I have a gluten intolerance. Unfortunately vegetables are what triggers Crohns for me. changing to a gluten free diet has helped a lot. I also take supplements that are gluten, soy and casein free. they are also non gmo and organic. e-mail me for more info jkhersh631@gmail.com
jennhJoined Apr 3, 2014
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