Community Forum

Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.

long uc flare up


Wed, January 21, 2015 2:07 PM

My son was diagnosed with ulcerative colitis two years ago. first couple flare ups were short lived and brought under control with prednisone along with his daily 4 doses of Asocol.  He has a new flare now since late october. we chose to fore go the predisone and try dietary changes. Well as of Decemeber 29th we decided we better go on a round of predisone 10 mg once a day. This still has not helped with the flare. Did we wait to long to bring the flare under control with the dietary changes? would it have been better to start predisone right away? I do not want him on Imuran, I am afraid of the serious side effects. thanks for any advice

FPO jcasey
Joined Jan 21, 2015

Thu, February 12, 2015 8:37 PM

 Reply posted for jcasey.

Prednisone really helps when i get a flare up which may be once a year . My Gastro Dr recommends start with 8 x 5 mg for 3 days then 7 x 5 mg for 3 days and so on until down to 1x5mg  or less a day . Within 2 days all pains are gone i feel like superman and can eat normal and bowel movements are less frequent. I wish i could take it all the time but you cannot apparently. I found a chinese alternative for prednisone a while ago that has no nasty side effects and is non habit forming its a mix of two herbs , unfortunatly i lost the details and cant seem to find it again on the web.
Used to take mercaptorurine a chemo drug but my Dr doesnt like it and preffers Prednisone if i have a flare up. I travelled to Israel a few times on buisiness and took some with me as a precaution , needed it once had a flare up there.

FPO magical
Joined Feb 9, 2015

Wed, January 28, 2015 1:45 PM

 Reply posted for jcasey.

As much as I hated the side affects of prednisone, It was the only thing that got me out of flares

 

FPO oh herd cr
Joined Nov 21, 2012

Related Topics

Weight and Eating
Author Image KelseyShoup
Joined Sep 26, 2020

Hello so I've been struggling to get my weight....

read more

Nausea and Vomiting with ...
Author Image crystal73d
Joined Aug 4, 2021

Hi all- I have been diagnose with Crohns disease ....

read more

Help losing weight
Author Image Twinsnana
Joined Feb 13, 2022

You're definitely not alone. I have Ulcerative....

read more