Community Forum

Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.

Previous Topic Next Topic

Nutritionist? Here nor there?

Wed, February 20, 2013 2:42 PM

HI Everybody! My name is Victoria. I was diagnosed in July of 2012, and I have been regulated (Thank God) over the past 8 months with 800mg of Pentasa daily. I also have hyperthyroidism so im being treated for that as well. They found out while I was in the hospital that I'm lactose Intolerant so ya, go figure.

I have been talking to a few people i know that have Chron's Disease, and they've been stressing that I need to go see a nutritionist. I already take Vitamin C, D, a multi, and fish oil daily. Is this really necessary? I mean I'm sure my insurance company hates me enough as it is. I have more doctors then friends! Is this THATTTTT important?

vrcouch31
Joined Feb 20, 2013

Thu, February 28, 2013 6:25 PM

Reply posted for vrcouch31.

Hi - I was diagnosed with Crohn's Disease in 1982. I have been fortunate to have 3 excellent gastroenterologists involved with my care in that time. I've been seeing my current doctor since 1994! I have also had 2 bouts with cancer and now have an ileostomy - which is an entirely different story altogether. Other than a few issues with the ileostomy, I have always been told to eat "whatever you can tolerate". This had changed over the years, however I have always found starchy foods to be very helpful - I am the King of Pasta - ;-). Carbonated beverages are a big no-no for me now. There is a lot of good information on a few reputable websites. For the most part I have never found a dietician or nutritionist who knows enough about Crohn's Disease to be useful. Just try different foods in moderation to see what you can tolerate from different food groups.

greg121
Joined Feb 28, 2013

Sun, February 24, 2013 11:58 PM

Reply posted for vrcouch31.

Hey Victoria,
It won't hurt to go see a nutritionist. They will tell you about healthy foods that you never even heard of..so it's a good idea to talk see them. Try Manuka honey from New Zealand(Amazon.com) & Turmeric. It's good for lowering inflammation & infections.
Take care

dimplezz
Joined Jan 10, 2013

Related Topics

My Story

tbg1501
Joined Apr 20, 2023

Hey everyone, I just wanted ....

read more

Having children

RevGird
Joined Apr 29, 2020

We will see I guess. My sister (born 7 years after....

read more

Breast augmentation and U...

Kiara98
Joined Feb 24, 2023

Hi everyone! To preface this, I’ve had UC si....

read more

Welcome to the Crohn's & Colitis Community!

This website is associated with the Crohn's & Colitis Foundation.

Please read our Top 12 Rules before posting messages and sharing stories. Always be courteous and sensitive to others!

Intended audience. The Crohn's & Colitis Foundation Online Community is intended for patients and their caregivers, family and friends. The Community is not intended for industry representatives or advertisers and these individuals are not permitted to participate on the site.

Meet the Crohn's & Colitis Community! Browse our site to see what our community is talking about and find issues important to you.

Join in and share your stories. After you feel comfortable with our site, register to share your thoughts on a regular basis.

Stay secure. Remember that our site can be viewed by anyone on the Internet. With the exception of our registration and personal pages, search engines are available within this site. To guard your privacy, follow these simple rules: do not share your address, phone number, details about your family, or anything else you would feel uncomfortable with others reading. If you post your personal email, be aware that you may receive spam e-mail from spammers who gather addresses off of the web.

Read and react to posts with care. If you don’t agree or are offended by someone’s post, take a step back and think before you reply. Since we can’t talk in-person to each other, we must recognize that we may be misunderstanding stories or posts. Please be sensitive to others’ feelings and ask for clarification before acting out.

Search before starting new topics. To keep our message boards easy to use, please use the search bar to locate topics of interest before starting a new thread. If you start a new thread, please use obvious subject headings and words that will catch the attention of others. Topics will be archived after 21 days of inactivity. To view past topics and posts, click on archive topics within each of the forums.

Stick to our guidelines. To keep this site safe for everyone, please do not post: doctors' names, treatment facility names and treatment specifics, contact information for others without their consent, links to websites with uncertain content or advertisements, requests for fundraising, items for sale, requests for study, survey and/or questionnaire participation or provocative information.

Sharing photos. Please use good taste and appropriate images when adding photos to your profile or personal stories. Photos should be in .jpg format.

Not following the rules? Crohn's & Colitis Community moderators routinely scan the message boards and will delete tasteless posts. If you post inappropriate messages or pictures or use offensive language in a post on multiple occasions, you will be notified via email and your account will be inactivated.

Report foul play. Help the Crohn's & Colitis Community moderators by reporting anyone that posts inappropriate messages or pictures by clicking the 'Report Abuse' button under the message or emailing ccfacommunity@ccfa.org.

Questions or concerns? Please feel free to email us at ccfacommunity@ccfa.org with any questions or concerns. We want you to feel comfortable here.

Terms & Conditions. By posting your story, questions, concerns and other information on the Community, you grant the Crohn's & Colitis Foundation or its authorized agent permission to publish, reproduce, record and use your stories as Crohn's & Colitis Community or the authorized agent sees fit in any medium or forum in a manner which helps to further the Crohn's & Colitis Community mission. You agree to release and hold harmless Crohn's & Colitis Community from any and all liability by any third party that may arise from the release of information to any third party or by any third party and agree that all text and other content made by you, for you or the person for whom you are the parent/guardian, shall be the exclusive property of Crohn's & Colitis Community. The Crohn's & Colitis Community cannot verify every claim made by a third party contributor to our Community and is not responsible for the authenticity of information posted.

Thank you! The Crohn's & Colitis Community is successful because of members like you!

Thanks!
The Crohn's & Colitis Community Team

*Any postings on the Crohn's & Colitis Community site should not replace your physician's advice. Always check with your personal physician before taking any action regarding your health.