Community Forum

Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.

Previous Topic Next Topic

How can I help my son

Tue, July 25, 2023 1:18 PM

My son was diagnosed earlier this year with UC. He's had all the symptoms for so long, but resisited going to the doc. His case is somewhat severe, but the biologic is helping the bleeding and the pain. His issue is that he cannot "hold it" and has had multiple accidents, even in his own home. I know this is a very personal issue, but I just wan't to hold him again to help like he was 5. But he's 36 and that won't fly living across the country. Thank goodness he works remote, but this is affecting his personal life. He is even afraid to shop at the grocery store.
Anyone else have this issue? Any advice?

A very worried mom...

Nicks mom
Joined Jul 25, 2023

Tue, October 08, 2024 10:26 AM

Reply posted for aleahmd.

Hey I´m 26,

Ive just got diagnosed with CU right side and im a bit worried about everything..

How it was in your case?

vgropsan
Joined Oct 8, 2024

Sat, July 27, 2024 5:44 AM

Reply posted for Nicks mom.

I’m so sorry to hear about your son's struggles. It must be so hard not being able to be there in person. Has he considered dietary changes or pelvic floor therapy?

Benjamin McLean
Joined Jul 8, 2024

Tue, August 22, 2023 4:27 PM

Reply posted for Nicks mom.

Hi, I am sorry to hear how much your son has been struggling. When I was first diagnosed I was also really worried to leave the house becuase I would not know where the nearest bathroom was and dealth with urgency issues. Hopefully once the biologic has more time to work these issues will resolve, but in the mean time he can ask his doctor about other ways to treat loose urgent stools. I take immodium which helps to reduce the number of times I have to go to the bathroom in a day and there are prescription medications that he can look into as well. Another consideration would be to try to use diet to treat these issues until the medication does its job. I used the Specific Carbohydrate Diet when I was first diagnosed and noticed immediate results with improved symptoms. I hope he is able to find what works best for him, good luck!

aleahmd
Joined Sep 8, 2022

Related Topics

Struggling to find answer...

KatSchneider
Joined Sep 1, 2023

Hi, I've been struggling to get a diagnosis si....

read more

My UC journey and progres...

Bonbon
Joined Sep 27, 2023

Hello all! I’m new here, I’ve been dia....

read more

Moving to US from UK.

Huntid
Joined May 25, 2023

Hi All, looking for some help with a ques....

read more

Welcome to the Crohn's & Colitis Community!

This website is associated with the Crohn's & Colitis Foundation.

Please read our Top 12 Rules before posting messages and sharing stories. Always be courteous and sensitive to others!

Intended audience. The Crohn's & Colitis Foundation Online Community is intended for patients and their caregivers, family and friends. The Community is not intended for industry representatives or advertisers and these individuals are not permitted to participate on the site.

Meet the Crohn's & Colitis Community! Browse our site to see what our community is talking about and find issues important to you.

Join in and share your stories. After you feel comfortable with our site, register to share your thoughts on a regular basis.

Stay secure. Remember that our site can be viewed by anyone on the Internet. With the exception of our registration and personal pages, search engines are available within this site. To guard your privacy, follow these simple rules: do not share your address, phone number, details about your family, or anything else you would feel uncomfortable with others reading. If you post your personal email, be aware that you may receive spam e-mail from spammers who gather addresses off of the web.

Read and react to posts with care. If you don’t agree or are offended by someone’s post, take a step back and think before you reply. Since we can’t talk in-person to each other, we must recognize that we may be misunderstanding stories or posts. Please be sensitive to others’ feelings and ask for clarification before acting out.

Search before starting new topics. To keep our message boards easy to use, please use the search bar to locate topics of interest before starting a new thread. If you start a new thread, please use obvious subject headings and words that will catch the attention of others. Topics will be archived after 21 days of inactivity. To view past topics and posts, click on archive topics within each of the forums.

Stick to our guidelines. To keep this site safe for everyone, please do not post: doctors' names, treatment facility names and treatment specifics, contact information for others without their consent, links to websites with uncertain content or advertisements, requests for fundraising, items for sale, requests for study, survey and/or questionnaire participation or provocative information.

Sharing photos. Please use good taste and appropriate images when adding photos to your profile or personal stories. Photos should be in .jpg format.

Not following the rules? Crohn's & Colitis Community moderators routinely scan the message boards and will delete tasteless posts. If you post inappropriate messages or pictures or use offensive language in a post on multiple occasions, you will be notified via email and your account will be inactivated.

Report foul play. Help the Crohn's & Colitis Community moderators by reporting anyone that posts inappropriate messages or pictures by clicking the 'Report Abuse' button under the message or emailing ccfacommunity@ccfa.org.

Questions or concerns? Please feel free to email us at ccfacommunity@ccfa.org with any questions or concerns. We want you to feel comfortable here.

Terms & Conditions. By posting your story, questions, concerns and other information on the Community, you grant the Crohn's & Colitis Foundation or its authorized agent permission to publish, reproduce, record and use your stories as Crohn's & Colitis Community or the authorized agent sees fit in any medium or forum in a manner which helps to further the Crohn's & Colitis Community mission. You agree to release and hold harmless Crohn's & Colitis Community from any and all liability by any third party that may arise from the release of information to any third party or by any third party and agree that all text and other content made by you, for you or the person for whom you are the parent/guardian, shall be the exclusive property of Crohn's & Colitis Community. The Crohn's & Colitis Community cannot verify every claim made by a third party contributor to our Community and is not responsible for the authenticity of information posted.

Thank you! The Crohn's & Colitis Community is successful because of members like you!

Thanks!
The Crohn's & Colitis Community Team

*Any postings on the Crohn's & Colitis Community site should not replace your physician's advice. Always check with your personal physician before taking any action regarding your health.