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hi, my names Kelsey and I'm 25. I was self diagnosed with IBS at 16 (too embarrassed to say anything to anyone) until my parents took actions as they started to notice and was diagnosed with UC 6 months later. High school after that was a breeze as Colazal put me in remission - until I went to college. I then tried Lialda, Apriso, Asacol, Asacol HD and nothing put me in remission. This past October a decision was made to start Remicade, however that didn't sit well with my body. I was unable to get through the infusion without having allergic reactions (chest heavy, low BP, trouble breathing). We are now on Entyvio. It took 10 weeks to see any improvements, only to see them go away due to the 8 week length between infusions (currently trying to get insurance approval for once a month). My question to anyone on Entyvio is what side effects have you noticed? I feel as if my hair has thinned out, and whenever I cut myself from scratching, it takes forever to heal. I'm not sure what my next step is if we decided to stop Entyvio. Maybe humira (if anyone has any input on that as I hear the injections are painful please feel free to post) or maybe surgery (Pros and cons is jpouch vs bag?). Thanks!

Reply posted for kelseybanana.

If you are using Entyvio and are having trouble with the tác dng ph in question, get in touch with a professional right away to get more information slither io and get help.

 Reply posted for kelseybanana.

I started on Entyvio in August 2015.  Prior to that I was on Remicade for 2 1/2 years (developed antibodies), then Humira (did not work), then Cimzia (worked off + on for more than a year).

As for side effects, I have not had any during the Entyvio infusion.  My main side effect is fatigue, and some of the easy bleeding that you mentioned.  Also some red "blood blisters?" that appear on my lower arms and last for a week or so and then fade.  A little hair loss but not that noticeable. Also the sinus congestion that I've had with all anti-TNF drugs.

I started seeing subtle improvements after my third Entyvio loading dose (at six weeks).  Each week gets a little better. Less trips to the bathroom, especially at night, and no more D or blood. I just had infusion #4 this week, at about the 3 1/2 month mark, and feeling so much better.  Not yet remission, but everything I read states that it is a slow working drug that usually take 6 months to fully kick in. Hope things work out well with you!

 Reply posted for kelseybanana.

Hey there, I'm 21 self diagnosed at 15, in 2009, similar to you until I finally got over the embarrassment enough to see a doctor and get diagnosed. I started on pantasa and azo then added humaria when I started college out of state in 2012. It proved to be to difficult to be that far from home with such health problems and I moved back in 2014 continuing with the humaria along with azo until early 2015. Then I started entivyo and have been on it for about 7 months. My doctor has already decided increase my dose to every four weeks so my next dose will be my first in the shortened time. As far as what has worked for me, nothing really. I can't pick out any length of time where I have felt relief from symptoms other than when I'm on a steroid regiment (like I am currently). My experience with humaria was nothing good. I never felt I benefited from it and I found the process to be painful. Eventually I feel it did me more harm than good just due to the stress of thinking about my medication being delivered on time through my university's mail system and the thought of having to inject my low fat body. I really never got used to the pain of the autoinjector, much different from my experience with flu shots and the likes. The entyvio has been a much better experience. The infusions only take a few hours and I'm better with ivs than I am with autoinjector shots. I haven't had adverse side effects and I'm hoping the increase dose will give me more relief. I haven't given up on it yet but I'm not sure I will continue with it much longer if I don't feel my health has improved by December. I also recently stopped drinking milk and I must say that that has seemed to benefit me more than any medication has. My appetite came back somewhat and now that I'm on steroids too I'm able to eat well.

 Reply posted for kelseybanana.

I am just about to start entyvio after my body built up antibodies to both remicade and humira. Humira is painful, but not nearly as painful as crohn's for me. I am holding high hopes for entyvio though. Entyvio and methotrexate make your hair fall out because they are chemotherapy drugs. I am really hoping that the folic acid will help combat that though.

 Reply posted for kelseybanana.

Entyvio can take several months for it to be in full effect. When I first started I ended up having to have surgery because it was "too little too late" but I restarted post op and it has been working well. I'm on entyvio now and haven't noticed too many side effects. Methotrexate made my hair fall out. I get headches that I think are from the entyvio but it's hard to tell. Personally I hated Humira, but that's because it didn't work well for me and i had site reactions every time. Good luck.